The Tuberous Sclerosis Alliance (TS Alliance) and The LAM Foundation are co-hosting five Regional TSC & LAM Conferences in 2019! Focusing on patients and caregivers, conferences will take place in Boston (April 13), St. Louis (June 15), Chicago (September 7), Atlanta (September 21), and Los Angeles (November 2) in 2019.
These one-day conferences will feature local leading researchers and clinicians specializing in TSC and lymphangioleiomyomatosis (LAM), as well as speakers from The ARC, Child Neurology Foundation and MassMutual discussing transition issues. They will also include networking opportunities to meet other families and individuals from the area. These full-day conferences will offer a Pediatric Track (Track 1), a Transition Track (Track 2) and an Adult Track with sessions important to adults with TSC and LAM (Track 3).
Date: Saturday, November 2, 2019
Time: 8:30 AM – 4:30 PM
Location: UCLA Meyer and Renee Luskin Conference Center
425 Westwood Plaza
Los Angeles, California 90095
Key topics will include:
- Research update, including upcoming clinical studies and trials for TSC and LAM
- Seizure types and treatments (pediatric and adult)
- Tumor growth and treatments
- Behavior and mental health
- Transitioning into adulthood
- Quality of life
- Kidneys and angiomyolipomas